Burhan Sultan
Jun 23 2025
New Report on Patient Registries Launched
Patient registries are more than just databases or collections of data. Registries are powerful tools
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Burhan Sultan
Dec 19 2024
Alpha-1 Family & Patient Conference 2024
Alpha-1 Family & Patient ConferenceThe Alpha-1 Patient & Family Conference took place on Saturday 5th
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Tomás Carroll
Mar 10 2023
New Patient Education Article on MZ AATD Published
A new article on MZ type Alpha-1 was published in the prestigious American Journal of
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Alpha1 Admin
Apr 03 2021
‘The majority of people carrying this gene have no idea’
Around 250,000 of Irish people are carriers of the gene causing Alpha-1 antitrypsin deficiency, a
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Alpha1 Admin
Mar 10 2021
February Marathon Challenge in aid of Alpha-1
Family and friends of one of the original Alpha-1 warriors Josephine McGuirk completed a unique marathon
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Alpha1 Admin
Feb 18 2021
Irish Alpha-1 Pioneer Wins Prestigious National Award
The Health Research Board (HRB) of Ireland has announced Gerry McElvaney, Consultant Respiratory Physician at
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