June 10, 2014 Comments Off

An Irish Alpha-1 patient Orla Keane had the opportunity to attend the 3rd Alfa Europe Alliance Meeting in Prague from May 9th to 10th. (more…)

June 10, 2014 Comments Off

The Alpha One Foundation had two representatives, Josephine McGuirk and John Hannan, attending the European Alpha-1 Conference which was held in Rome in September 2007. This was a great opprtunity for Irish Alphas

June 10, 2014 Comments Off

The 4th International Alpha-1 Patient Congress and International Research Conference on Alpha-1 Antitrypsin Deficiency took place in Barcelona in April this year.We were privileged to be asked to attend as country delegate and

June 10, 2014 Comments Off

National Alpha-1 Targeted Detection Programme Alpha-1 Foundation Ireland is dedicated to increasing diagnosis, raising awareness and improving the treatment of Alpha-1 Antitrypsin Deficiency (Alpha-1). Alpha-1 is a common inherited condition but is massively

June 10, 2014 Comments Off

The national alpha-1 antitrypsin deficiency (Alpha-1) registry of Ireland was established in 2005 to collect information on Alpha-1 individuals throughout the island of Ireland. The registry is a confidential database that records medical

April 24, 2014 Comments Off

Organisation Alpha-1 Foundation Ireland was founded in 2001 and is based in the RCSI Education and Research Centre at Beaumont Hospital.  Vision   That every Alpha-1 individual in Ireland is diagnosed and receives specialist

September 4, 2012 Comments Off

Commissioned by the Alpha-1 Foundation Ireland in collaboration with COPD Support Ireland and funded by the Health Research Board, this educational film describes the genetic condition alpha-1 antitrypsin deficiency (Alpha-1 for short). People

September 4, 2012 Comments Off

The late John O’Donnell from Donegal was a talented poet who developed lung disease at a young age. Limited physically by his condition, John became a keen observer of the world around him,

September 4, 2012 Comments Off

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