January 29, 2018 Comments Off

Commissioned by the Alpha One Foundation in collaboration with COPD Support Ireland and funded by the Health Research Board, this educational film describes the genetic condition alpha-1 antitrypsin deficiency (Alpha-1 for short). People

June 27, 2014 Comments Off

 In May 2016 the HSE designated the Alpha-1 Clinical Unit at Beaumont Hospital (along with Alpha-1 Foundation Ireland) as the National Centre of Expertise for Alpha-1.Alpha-1 Foundation Ireland is based in the RCSI

June 12, 2014 Comments Off

The phrase "together we are stronger" is especially apt in the context of Alpha-1.  Alpha-1 Foundation Ireland works closely with the following organisations to advocate for Irish individuals with Alpha-1, as well as

June 10, 2014 Comments Off

Congratulations to all the ladies who took part in this year’s Flora Women’s Mini Marathon on the June Bank Holiday weekend. We are very grateful for every fundraising effort which helps us to continue

June 10, 2014 Comments Off

Dear Friends of Alpha-1, In April 1963, Swedish researchers Carl-Bertil Laurell and Sten Eriksson published their landmark research on the discovery of Alpha-1 Antitrypsin Deficiency. To commemorate the 50th anniversary of the discovery,

June 10, 2014 Comments Off

The 29th of February 2012 is the 5th International Rare Disease Day, and to raise awareness of this day a promotional video was recorded featuring people who have a rare disease. The video

June 10, 2014 Comments Off

The Annual Alpha-1 Patient Conference for 2011 was a big success. Thanks to everyone that turned up on the day. The Alpha-1 Patient Support group had a successful meeting in the afternoon. They discussed

June 10, 2014 Comments Off

Our annual Alpha-1 patient meeting for 2010 was held on the 8th of October in Marino Institute of Education on Griffith Avenue in Dublin.  It was a great success with numerous speakers, a

June 10, 2014 Comments Off

The annual Alpha-1 patient meeting will be held on Saturday 10th October at 10.30am in Marino Institute of Education on Griffith Avenue, Dublin 9. All Alpha-1 patients and their families are invited to

June 10, 2014 Comments Off

The Flora Women's Mini Marathon takes place on Monday 1st June 2009. This is a unique opportunity for Alphas and their families in alliance with the Patient Support Group and the Alpha One

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